Arjan, that is one horrible story, sorry to hear that.
I guess concerts are a big no-no for you huh...
I guess concerts are a big no-no for you huh...
No offense taken, although your posting did confuse me for a moment.wireframe said:Oh, so sorry to make a joke about it. I thought it was a tongue in cheek reference to noisy kids or a nagging wife. Heh.
I have a weak one myself. Not enough to actually be annoying (except immediately after I have listened to loud music), but I think I can see how it can drive people out of their minds over time.I've got something like that: tinnitus. Talk about annoying. Not being able to tune out noise that isn't even there.
arjan de lumens said:It's not that I want you guys to feel sorry for me or anything like that; my current life situation is generally rather tolerable and could in some ways be called successful, so there is no need to pity me these days. It's more just an account of an unusual malady; if I can help anyone with similar problems or help advancing the state of research, I would be happy to do so.
Strangely not. For some reason, I don't react badly to music. So when the band or DJ starts to play and take over 100% of the sound picture, I am fine (although having to deal with the noise of crowds before/after the actual show is horrible). I have also been able to use this as a coping strategy in everyday life: if I know that I will be placed in a noisy setting for a moderate amount of time (e.g. train or plane rides), I dig out my Discman/Walkman, put on some black metal music and crank up the volume as far as my pain threshold allows. The nature and the volume of such music is quite effective in blocking out unwanted sounds, but it's quite tiresome to do it too much.london-boy said:Arjan, that is one horrible story, sorry to hear that.
I guess concerts are a big no-no for you huh...
arjan de lumens said:Your brain will for you at a subconscious level filter out some sounds as important and some as unimportant - if someone shouts your name, it will be flagged as important and you will react, if it is just the TV that is on in the background or a co-worker tying on a keyboard, it will be flagged as unimportant and you won't notice it unless you listen specifically for it. No so with me - everything is flagged as important. At least, that's how I try to explain it. As a result, putting me in a noisy setting will exhaust me within about ... 20 seconds. After that, the constant influx of stuff that I cannot filter out will gradually overwhelm me, essentially tearing any sense of control of my mind away from me and turning my normal thought processes into a garble. Eventually, there start to appear patterns in the garble; at this point, things start to feel a bit like how I have heard people describe bad LSD trips.
However, if I am taken out of the noisy setting and into a reasonably noise-free setting, I revert to a "normal" (exhausted and nervous, but otherwise nothing extraordinary) state of mind within a few minutes, which according to my psychiatrist rules out traditional psychosis/schizophrenia and placing me essentially nowhere as far as usable diagnoses/treatment are concerned.
The first half-year I had this condition was easily the worst months of my life. After that, I have been able to set up a life situation where the amount of random noise that I am exposed to (at work and at home) is held down - I had to do either that or suicide.
It's not that I want you guys to feel sorry for me or anything like that; my current life situation is generally rather tolerable and could in some ways be called successful, so there is no need to pity me these days. It's more just an account of an unusual malady; if I can help anyone with similar problems or help advancing the state of research, I would be happy to do so.
I used to have lots of problems distinguishing between sounds that I heard at the same time, as well as general speech recognition - to such an extent that if I went to a party (several years before I started to have the important/unimportant-sound filtering problems) I would be able to make out only about 10% of what was said in any conversation I tried to listen to. This has gotten a little bit less problematic (although I have had very limited opportunity to train such a skill), but still not very good. This is NOT a problem with the ear; I have had my hearing tested several times, every time with the result that I score slightly above average on every test tone.sytaylor said:As well as any other sounds there at the same time, giving him a hearding aid that apmlified those frequencies he's not "tuned into" helped a lot. Doubt you have the same condition, but its a suggestion based on simialr symptoms.
arjan de lumens said:Strangely not. For some reason, I don't react badly to music. So when the band or DJ starts to play and take over 100% of the sound picture, I am fine (although having to deal with the noise of crowds before/after the actual show is horrible). I have also been able to use this as a coping strategy in everyday life: if I know that I will be placed in a noisy setting for a moderate amount of time (e.g. train or plane rides), I dig out my Discman/Walkman, put on some black metal music and crank up the volume as far as my pain threshold allows. The nature and the volume of such music is quite effective in blocking out unwanted sounds, but it's quite tiresome to do it too much.
While I have heard about such filters but never been successful in actually getting access to one. As for ear surgery, I have considered intentionally inflicting deafness on myself, but never actually gotten around to do it (I don't feel an immediate need right now).Fred said:Arjan have you considered ear surgury or some sort of device to filter the sound out for you automatically?
From one day to the next. I have been unable to identify any particuar event or precursor for this condition.Im rather curious about your condition actually, did it hit you from one day to the next or was it very gradual? Did you struggle with this slightly as a child?
I was bullied for a couple of years in primary school, which I believe have given me other problems - that could be relevant. Also, I have been able to find that children with Autism sometimes suffer this condition from birth and throughout their entire lives - this is probably relevant since I apparently show many traits of Autism/Aspergers otherwise, but acquring such a condition in adult age is still rather uncommon in that group too.What you describe occurs sometimes in post traumatic stress disorder cases, often with veterans of war. The association with loud or myriad confusing noises with the stress and concentration of war can literally change their brain chemistry. AFAIR there are some therapies involved that have been somewhat beneficial.
That's OK, don't worry. It is (or at least should be) quite interesting from a psychological/neurological research point of view.london-boy said:Wow sorry to sound somewhat "amazed" but your condition really sounds so unusual i can't help but feel really interested...
Please go ahead; the more I can learn about this condition, the better. The psychiatrists etc I have been in touch with so far seem to be rather puzzled by my case - not only the filtering issue, which seems to be very apparent in certain neurological tests but doesn't match any case they've seen before, but also by stuff like my reaction to alcohol (which has more in common with catatonia than with traditional drunkenness).Fred said:Well coincidentally im going to lunch on wednesday with a neurobiologist friend here at Columbia, who just so happens to be one of the best in the world at brain trauma, if you don't mind i'll bring it up. I suspect he might have something interesting to say about it.
arjan de lumens said:Please go ahead; the more I can learn about this condition, the better. The psychiatrists etc I have been in touch with so far seem to be rather puzzled by my case - not only the filtering issue, which seems to be very apparent in certain neurological tests but doesn't match any case they've seen before, but also by stuff like my reaction to alcohol (which has more in common with catatonia than with traditional drunkenness).
Nah. I have tried several times, but found it surprisingly hard to find keywords that would give me relevant/useful hits.london-boy said:Google it.
Sorry, i just HAD to.
Wasn't sure what this term meant, so I tried to read up and do a test at learning-styles-online.com . The answer appears to be a rather clear 'no'.nelg said:arjan,
would you consider yourself a visual learner?
Moderate fear of crowds. This has appeared after the filtering condition appeared, but is sometimes bothersome even if I use the Walkman "protection" I mentioned above.do you suffer from anxiety?
Not really sure. I have always had difficulties falling asleep (~2 hours from I go to bed until I fall asleep is typical), but I rarely have trouble getting a reasonably normal amount of sleep once I do fall asleep. For some odd reason, if I set my alarm clock I always wake up just BEFORE it rings, no matter what time I actually set it to.do you have periods of insomnia?
arjan de lumens said:I would be able to make out only about 10% of what was said in any conversation I tried to listen to.
arjan de lumens said:Wasn't there some news recently about an antidepressant that turned out to be quite effective against tinnitus?
People tend to react very differently to antidepressants; I know people who have been helped greatly by them and other people who have experienced nothing but unpleasant side-effects. My personal experience - my psychiatrist put me on another SSRI at one point - was a bit disturbing: first, I got vaguely sick for ~2 weeks, then I was basically OK but with a very flattened emotional life, then after ~1 year I started to get strong urges to self-injure (which I did manage to resist), which went away when I went off that stuff and haven't returned since.wireframe said:Zoloft. I am not sure taking something like that is what I want to do. I fear the cure more than the disease.
PS. I actually acquired some when I read about it just a few weeks ago. I was full of hope, but then, when it became real in my hands, I started having second thoughts. Browsing the Internet and reading up on possible side-effects of the drug didn't exactly help either.